TALKING TO
YOUR
DOCTOR

CREATE A PERSONALISED GUIDE TO HELP YOU GET
THE MOST FROM YOUR CONSULTATION WITH YOUR DOCTOR

IPF is a serious condition, but there are therapies that can manage its impact on you and help you hold on to your independence. It is important to discuss these therapy options with your doctor and decide on the approach that is right for you. In addition, you may also wish to bring a friend or family member with you. They can help provide the support you need before, during and after your consultation.

This guide has questions and information designed to support these conversations with your doctor about IPF and your options.

Preparing for your consultation

Build your own personalised consultation guide by clicking on all relevant boxes in the form below.

MY NEXT CONSULTATION:

Time:  
Date:  

WHAT IS LIVING WITH IPF LIKE FOR ME?

Select the IPF symptoms that impact on your life the most:

Arrow button Find out how other patients and their loved ones adjust to life with IPF

It is normal for patients to go through a rollercoaster of emotions immediately after diagnosis, emotions such as worry, anxiety, relief, apprehension, readjustment.

As IPF worsens, many day-to-day activities will become harder. By informing themselves about their condition and management options available to them, patients can confidently work with their doctor to find the approach most suited to helping them continue an active life.

MY DAILY GOALS:

Arrow button See how other people with IPF manage their condition and continue with ordinary day-to-day activities

As IPF spreads, symptoms such as cough and breathlessness can worsen, causing many day-to-day activities to become harder. Your doctor will be able to help you manage your condition, which may allow you to continue these activities for longer.

MY FUTURE GOALS:

Arrow button Learn about other patients’ future goals and what they are looking forward to

In the longer term, it’s important to have things to look forward to. Discussing goals for the future and any upcoming special occasions can help you and your doctor work together to find a treatment approach that can support you in continuing an active lifestyle.

MANAGING MY IPF:

Look at the list of topics below and select the ones that matter most to you:

OTHER ITEMS TO DISCUSS WITH MY DOCTOR:

Once you've completed this form, click 'review' to edit, save or print your guide so you can take it with you to your consultation

MY NEXT CONSULTATION:

Time: Date:
I WANT TO DISCUSS:

MY CHALLENGES:

  • Check mark COUGH
  • Check mark BREATHLESSNESS
  • Check mark DIFFICULTY EXERCISING
  • Check mark Other
  • Check mark TIREDNESS
  • Check mark LOSS OF INDEPENDENCE
  • Check mark FEELING LOW

MY DAILY GOALS:

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MY FUTURE GOALS:

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MANAGING MY IPF:

  • Check mark HOW CAN I SLOW DOWN MY DISEASE PROGRESSION?
  • Check mark WHAT OTHER THERAPIES MIGHT BE SUITABLE
    FOR ME?
  • Check mark HOW CAN I CONTROL MY COUGH BETTER?
  • Check mark WHAT CAN I DO DAY-TO-DAY TO HELP?
  • Check mark HOW CAN I MANAGE OXYGEN THERAPY?
  • Check mark WHAT THERAPIES AM I CURRENTLY RECEIVING?
  • Check mark WHAT ARE THE BENEFITS AND RISKS OF THERAPIES?
  • Check mark WHEN CAN I START ANTIFIBROTIC TREATMENT TO SLOW MY ILLNESS DOWN?
  • Check mark WHAT EMOTIONAL SUPPORT IS AVAILABLE TO ME?
  • Check mark WHAT SUPPORT IS AVAILABLE TO MY LOVED ONES?

OTHER ITEMS TO DISCUSS WITH MY DOCTOR:

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