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USEFUL WEB LINKS
For additional answers to questions about IPF, you may find the following Web sites helpful. This is a partial list; by searching the Internet, you can find other sites that may help you.
GENERAL
The Coalition for Pulmonary Fibrosis is a nonprofit organization founded to further education, patient support, and research efforts for pulmonary fibrosis (PF), specifically IPF. The website includes information for patients and a list of support groups.
www.coalitionforpf.org
The PILOT Idiopathic Pulmonary Fibrosis: Patient Information Brochure is a downloadable pdf with information about IPF diagnosis, treatment, and patient resources. Note: this link leads to a PDF file.
www.pilotforipf.org/resources/PILOT_Patient_Ed.pdf
The American Lung Association offers information and resources for improving lung health.
www.lungusa.org
Medline Plus is a service of the US National Library of Medicine and the National Institutes of Health that provides detailed content on pulmonary fibrosis as well as related links.
www.nlm.nih.gov
The Canadian Lung Association is dedicated to doing everything possible to improve respiratory health, offering information and local resources for people with lung diseases.
www.lung.ca
OXYGEN
Breathin' Easy is a guide for travelers with using portable oxygen, including tips and articles on traveling by air, sea, rail, and road.
www.breathineasy.com
The National Home Oxygen Patients Association was established to give supplementary oxygen users the information necessary to lead productive lives.
www.homeoxygen.org
LUNG TRANSPLANTATION
The Brigham and Women's Hospital's Lung Transplantation Program web site offers valuable information on lung transplantation.
www.brighamandwomens.org
Newlungs.com offers an extensive list of links to resources about lung transplantation on the Internet.
www.newlungs.com
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