IPF - I am Prepared to Fight
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FOR CAREGIVERS

> Books & Web Links

CAREGIVER WEBSITES

The Family Caregiver Alliance supports and sustains the important work of families nationwide caring for loved ones with chronic, disabling health conditions through pioneering programs, information, education, services, research, and advocacy.
www.caregiver.org

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The National Family Caregivers Association The National Family Caregivers Association reaches across the boundaries of different diagnoses, different relationships, and different life stages to address the common needs and concerns of all family caregivers.
www.nfcacares.org

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The National Alliance for Caregivin The National Alliance for Caregiving is a nonprofit coalition of national organizations focusing on issues of family caregiving.
www.caregiving.org

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Caregivers-USA Caregivers-USA is a nationwide, noncommercial directory of community-based caregiver support services—intended to help individuals who are providing care for a family member or friend.
www.caregivers-usa.org

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The National Family Caregiver Support Program offers a variety of caregiving resources, including where to find help, ways to take care of others and yourself, caregiver support groups, and other useful resources and ideas.
www.aoa.gov

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Today's Caregiver magazine Today's Caregiver magazine is a leading provider of information, support, and guidance for family and professional caregivers.
www.caregiver.com

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SUGGESTED READING

The Breathing Disorders Sourcebook The Breathing Disorders Sourcebook
F.V. Adams, MD
The Breathing Disorders Sourcebook explains various types of breathing disorders as well as other factors that limit breathing. It also includes exercises and tips on how to improve breathing.

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The Official Patient's Sourcebook on Idiopathic Pulmonary Fibrosis The Official Patient's Sourcebook on Idiopathic Pulmonary Fibrosis
J.N. Parker and P.M. Parker
A comprehensive manual for anyone interested in self-directed research on IPF. It is fully referenced with ample Internet listings and a glossary.

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Caregiver's Handbook: A Complete Guide to Home Health Care Caregiver's Handbook: A Complete Guide to Home Health Care
Visiting Nurse Associations of America
The pictures, charts, glossaries, and sample documents in this book make it easy for a caregiver to gain needed skills to help keep a loved one at home and save on costs by supplementing the work of healthcare aides.

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Love, Honor, & Value Love, Honor, & Value
S.G. Mintz
This book, written by Suzanne Mintz, the president and cofounder of the National Family Caregivers Association, relates her own experiences as a family caregiver and discusses the physical, emotional, and financial effects of caregiving on the entire family.

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Helping Yourself Help Others: A Book for Caregivers Helping Yourself Help Others: A Book for Caregivers
R. Carter
A book by former First Lady Rosalynn Carter that addresses the social issues that have created what she calls a "caregiving crisis." Practical solutions are offered to the problems caregivers typically experience, such as isolation, burnout, anger, and helplessness.

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And Thou Shalt Honor: The Caregiver's Companion And Thou Shalt Honor: The Caregiver's Companion
B.W. McLeod
This is a comprehensive book that contains resources, checklists, and medical and support information that can help individuals who are caring for family members or who foresee the need for care in the future. It is a companion to the two-hour PBS original broadcast entitled And Thou Shalt Honor.

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When my husband was diagnosed with IPF, I told I him that we'll work on it together. Together, we can make it through.
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